Dad went for his appointment yesterday with the surgeon that did his biopsy. We were all ready to hear more about Hodgkin lymphoma and treatment options, but that is not what happened.
We found out that the first diagnosis of Hodgkin lymphoma was wrong. Dad actually has non-Hodgkin lymphoma. More specifically he has T-cell Rich Large B Cell lymphoma. To say we were all a little rattled is an understatement. We all immediately started researching this new diagnosis to much disappointment. There is not a whole lot of information on the Internet about this type of lymphoma. The information that is there is very old information. So, Dad called the office of his new oncologist to see if anyone could give us some information. Late afternoon on a Friday, we really did not think that he would get any answers, but he did! The doctor himself got on the phone to explain things to us and calm some of our fears.
So, here is what we do know about T-cell Rich Large B Cell lymphoma
- It is an aggressive non-Hodgkin lymphoma (aggressive lymphomas actually have a better cure rate than non aggressive)
- This type of lymphoma is often mistaken for Hodgkin lymphoma.
- It is a rare sub type of Large B Cell lymphoma.
- It can be treated with chemotherapy.
Dad is going for some more tests on Monday and Tuesday to confirm this new diagnosis and come up with a treatment plan. We will keep you updated as we find out more information. Thanks for taking this journey with us.